Founder of “World of Broken Hearts” Suha Dabit is all too familiar with the painfully personal struggle of caring for a child with congenital heart disease( CHD ). In fact, her own daughter, Nadia, wouldn’t be alive today without a heart donation.
With her CHD& Organ Donation Awareness photography blog, Dabit is on a mission to draw attention to the dire need for nerve gifts for the 40,000 babies affected by CHD each year. Nothing can capture that need quite like photographing families coping with CHD during their most raw and vulnerable times.
“After five and a half months of awaiting, we received the call, ” shared Dabit of her own experience. “They observed a perfect match, a whole, four ventricle heart, her lifesaving gift, a new chance at life. After nearly six months of awaiting and praying, we were able to bring Nadia home again.”
This is why I became a photographer, ” she explains. “Some CHD babies never leave the hospital after they are born, and taking photos, let alone professional photos of them, is the latest thing on a family’s head. I know this because I have been there. I craved other families to have portraits they could hold on to and cherish forever.”
Dabit says she “captures the spirit of these little fighters” with each session, telling each of their unique tales with powerful imagery.
And perhaps no one’s tale has captivated the hearts of the Internet quite like sweet 2-year-old Adalynn who died in her parents’ limbs while waiting for a nerve transplant.
“I could tell you about the approximately 40,000 newborns that are born every year with a congenital nerve shortcoming. That is roughly 1 in 100 newborns, every year.”
“I could tell you about the half a nerve that Adalynn was born with or many other different congenital heart imperfections that affect so many children across the globe.”
“I could tell you about how underfunded CHD research is.”
“I could tell you how babes with CHD’s require a nerve transplant at some point in “peoples lives”, why and what you could do to help.
I could tell you that Adalynn is one of the 20 people that succumb every day waiting for a transplant.”
“Or, I could tell you about my perspective of what it was like being in that chamber to document their last moments together as a family of six.
But there aren’t any terms to describe the sorenes and love I witnessed.”
“CHD asserts so many lives, too many lives. It tears households apart and forces-out siblings to grow up way too fast. It changes you in every aspect of their own lives, and to the very core of our heart and soul.
It is hard, difficult and unfair.”
“This. This is the reality for many CHD families every day.”
“Kristi and Justin, thank you for let me share with the world such personal and intimate moments.
Fly high babe girl. You fought so hard and touched so many lives.”
“I am hoping to shed more light on the number one disease that claims so many lives and to inspire people to become organ donors, ” says Dabit. “If through my job I touch just one person to become a donor, eight lives can possibly be saved.”
You can be part of this life-saving try. Visit Donate Life to register to become an organ donor today.